YITS BEEN one week since we posted this GoFundMe! Its sooo0o cliche but I really cant thank yall enough for your continued care, support, and kindness. Truly incredible to feel so held by a community of over 300 people (just based off donations here). Mutual aid is all we have and I really can't wrap my head around how much this effort has spread and continues to grow. Deep, deep thanks to you all.
As far as updates, I haven't gotten too sick or fatigued from the daily radiation / Temodar (chemo pill) combo, but I'm told that usually hits about halfway through the treatment process. So knock on some wood for me y'all. The rhythm of daily trips to Roswell is starting to feel a bit more normal. Radiation itself takes about ~5 minutes, which is shorter than the roundtrip drive to the center. Incredibly quick to nuke my brain!
In other news, I've been fighting Chase and Air Canada who refuse to refund my flights for a trip I was supposed to go on next week. I can no longer go on the trip due to my emergency radiation treatment being at the same time. Feel free to tag /bully them on socials since that's the only way I've gotten a human to respond to me! Truly dystopian, but whatever works.
Also, Tuesday, May 7th was Head to the Hill 2024! More than 300 brain tumor advocates from across the country were on Capitol Hill this week to meet with their members of Congress and urge them to take action and support increased brain tumor research funding and patient-first priorities.
You can still fill out this form and urge your representatives to support this initiative — from wherever you are — to join and boost the message from our advocates in Washington, D.C. It takes only a few minutes! Let your representatives know we need increased funding for brain tumor research and the support of the new Bolstering Research And Innovation Now (BRAIN) Act, a first-of-its-kind bill that would benefit patients with brain tumors and research related to rare and highly deadly cancers.
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